I was expecting the early weeks of being pregnant to be hard. I knew that I would have to await the results of a test for SMA. I knew that the early weeks are stressful anyway, especially now that I am that little bit older. At 36 years old I am now classed as a... Continue Reading →
Written on 29th March... Following on from this post So we pick up the limbo part 2 story on the Wednesday after I had the NIPD blood test… We had been waiting 9 days. To be totally honest my brain was in a pretty dark place. I wasn’t sleeping very well at all. I am very... Continue Reading →
Written on 27th March 2019... We decided that we would like 1 more baby to complete the family. After Eilys was born I had a feeling that I really wanted to have a family of 3 children. I could visualise it. And then we lost Eilys to SMA type 1 and fell pregnant with Evan.... Continue Reading →
One month today it should have been Eilys' 4th birthday. For the past 3 years on her birthday we have tried to keep it as her special day, a day of celebration rather than sadness. We'd love it if you could joining join in again this year with our Wear Purple for Eilys Day. It's... Continue Reading →
