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It takes a Village…

"It takes a village" is an African proverb meaning that in order to raise a child one cannot just do it alone, one needs an entire community to help and guide the parents and the child. I was thinking about how true this was the other day and thinking how it also takes a village... Continue Reading →

4th time’s the hardest…

Today should have been Eilys' 4th birthday. Her 4th Birthday. Every time I think it or say it it hurts. This one seems to hurt more than the others did. I think the reason for this is that with turning 4 comes so many changes in a child's life. At 4 a child becomes their... Continue Reading →

Why purple?

Today should have been Eilys' 4th Birthday. On her birthday I ask people to wear something purple in her memory. Eilys always had a lot of purple things, she wore a lot of purple and it looked lovely on her. It suited her beautiful colouring. Her pale skin, her gingery/strawberry blonde hair and her intense... Continue Reading →

Pregnancy After Loss

I was expecting the early weeks of being pregnant to be hard. I knew that I would have to await the results of a test for SMA. I knew that the early weeks are stressful anyway, especially now that I am that little bit older. At 36 years old I am now classed as a... Continue Reading →

Limbo part 2

Written on 29th March... Following on from this post So we pick up the limbo part 2 story on the Wednesday after I had the NIPD blood test… We had been waiting 9 days. To be totally honest my brain was in a pretty dark place. I wasn’t sleeping very well at all. I am very... Continue Reading →

Pushing my luck?

Written on 27th March 2019... We decided that we would like 1 more baby to complete the family. After Eilys was born I had a feeling that I really wanted to have a family of 3 children. I could visualise it. And then we lost Eilys to SMA type 1 and fell pregnant with Evan.... Continue Reading →

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