"It takes a village" is an African proverb meaning that in order to raise a child one cannot just do it alone, one needs an entire community to help and guide the parents and the child. I was thinking about how true this was the other day and thinking how it also takes a village... Continue Reading →
Today should have been Eilys' 4th birthday. Her 4th Birthday. Every time I think it or say it it hurts. This one seems to hurt more than the others did. I think the reason for this is that with turning 4 comes so many changes in a child's life. At 4 a child becomes their... Continue Reading →
Today should have been Eilys' 4th Birthday. On her birthday I ask people to wear something purple in her memory. Eilys always had a lot of purple things, she wore a lot of purple and it looked lovely on her. It suited her beautiful colouring. Her pale skin, her gingery/strawberry blonde hair and her intense... Continue Reading →
I was expecting the early weeks of being pregnant to be hard. I knew that I would have to await the results of a test for SMA. I knew that the early weeks are stressful anyway, especially now that I am that little bit older. At 36 years old I am now classed as a... Continue Reading →
Written on 29th March... Following on from this post So we pick up the limbo part 2 story on the Wednesday after I had the NIPD blood test… We had been waiting 9 days. To be totally honest my brain was in a pretty dark place. I wasn’t sleeping very well at all. I am very... Continue Reading →
Written on 27th March 2019... We decided that we would like 1 more baby to complete the family. After Eilys was born I had a feeling that I really wanted to have a family of 3 children. I could visualise it. And then we lost Eilys to SMA type 1 and fell pregnant with Evan.... Continue Reading →
One month today it should have been Eilys' 4th birthday. For the past 3 years on her birthday we have tried to keep it as her special day, a day of celebration rather than sadness. We'd love it if you could joining join in again this year with our Wear Purple for Eilys Day. It's... Continue Reading →
Hello! I hope you are all doing ok, sending you all a hug. Right, time for task 4... This week is like you to write a letter. This could be a letter to your missed loved one, you in the past or you in the future... Or anyone really. There might be things you wanted... Continue Reading →
It is that time of the week again. To be honest I wasn’t sure if I was going to be able to do this one on time. I got a sickness bug (yuk) and then my eldest caught it too (double yuk). But he seems to be settled, after cuddles and Monsters Inc, so I... Continue Reading →
