All my life seems to be at the moment is noise. White noise to help Carys sleep. Lullabies. Dylan asking me 1000 questions an hour throughout the day. Netflix. Blippi. Hey Duggee. Games on the tablet computer. Educational programs on the laptop. Zoom chats. The boys bickering. Carys squealing. The nobhead across the road playing... Continue Reading →

Pregnancy Update

Hellooooo, long time no blog (I know, I am crap!) Well, pregnancy is rolling along nicely. I always find that pregnancy takes a long time. I am not one of these people who says that it flies by. It d-r-a-g-s especially the middly bit between telling people and the 3rd trimester. Anyway the final stretch... Continue Reading →

Pushing my luck?

Written on 27th March 2019... We decided that we would like 1 more baby to complete the family. After Eilys was born I had a feeling that I really wanted to have a family of 3 children. I could visualise it. And then we lost Eilys to SMA type 1 and fell pregnant with Evan.... Continue Reading →

Wear Purple for Eilys Day 2018

It is a month today until what should have been Eilys’ 3rd birthday. I cannot believe that is nearly 3 years since I first met her. It seems like forever ago and like no time at all. It is nearly 2 years since our last cuddle with her and again, I can’t believe it. It... Continue Reading →

My thoughts…

I’m reblogging this in light of the Alfie Evans case. This time it feels so personal. I think about all the incredible Doctors, nurses, physios etc who helped Eilys and us are now potentially having abuse hurled that them on their way to work. I think about the children and babies who have a mob outside their hospital windows as they are poorly, recovering or dying. I think of all those worried parents, parents of ill children. Parents making impossible decisions and parents who have just lost their children who have to battle through a rabble of protesters to get to their children or home again. Alder Hey were so wonderful to us, I count us as lucky to have been under their care. Alder Hey felt like a safe space for us all. It is a truly special hospital. So please stop this. It’s not helping anybody, certainly not that very little boy in the middle of it all.

I know this blog post is about Charlie Gard but my feelings are the same towards this case too.

The Glass Half Full (of Gin)

The case of Charlie Gard has been weighing on my mind for quite a while and I’m finding it all really quite upsetting. It is definitely trudging up a lot of thoughts and feelings about Eilys. Maybe we should have tried her in a drug trial or kept her alive with machines, maybe we should have ignored our Doctor at Alder Hey and found another who told us what we wanted to hear. If we had, maybe she’d still be here. Maybe.

We were offered a drug trial. In fact there were 2 going on in the UK when she was diagnosed and we did look into them but decided against taking part. One was in London and the other was in Newcastle. Both would have meant travelling to and from either place once or twice a month. Both would have meant handing Eilys over to some researchers for a…

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Left over Easter Egg Rocky Road

It’s that time of year again. We have loads of leftover chocolate and this is a great way to upcycle it 🤣

The Glass Half Full (of Gin)

This time of year there is a lot of chocolate left in my house and it needs to be gone so I can move on and not be constantly munching on it. Rocky Road is the perfect thing to do with it. It is easy to make, you can use up a lot of stuff you have lying around and it is yummy. Also, it is brilliant to share with work buds, for lunchboxes and you can freeze it. Win win! I made a batch yesterday and it is delicious. Rocky Road is also great to have help from the little people in your life. So here is my recipe. Mix and match the ingredients around, and the quantities as long as you keep the ingredients that are in bold the same then your laughing.

250g Easter Egg Chocolate, broken into little bits (a mix of types is fine)


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